Monday, 07 July 2008
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This Sea Called Autism
One of my biggest fears as a parent was Josiah being diagnosed with Autism. I used to go to all the pediatrician appointments with butterflies in my stomach fearing to hear that word. And it just happened. Two weeks ago, the same day that Josiah was fit for eyeglasses, the pediatrician dropped the "A" word. With that came the prognosis of "this young wee man will probably grow up having some learning problems". I had heard something so similar from the same doctor, "he'll never be a brain surgeon" just a year ago. He then recommended www.nas.org.uk so that will learn about this thing called Autism.
After hearing about the need for eyeglasses, and the autism diagnosis, and being 22 weeks pregnant.. I just couldn't see straight. We came home, and I literally cried my heart out. I had never felt such pain in my life. I had never realized how hard and painful being a parent can be.
After crying, which still is helping, I hit the internet and the Lord has been comforting me more and more. My first reaction was just to take it one day at a time. No need to worry about tomorrow, the Lord might return and this whole thing will be over.
Next came, "I can do all things through Christ who strengthens me". At times it's quite overwhelming and the whole dark prognosis is just suffocating.
Yesterday, I found out two things that have helped many children with autism: Gluten and Casein Free diet, and the ABA approach. This was a breath of fresh air for us. We were so thankful to have found all this information and for all those families who have written about their journey and their helpful tips. We have already started the elimination of all dairy from Josiah's diet and God willing will be eliminating gluten. This diet might or might not help Josiah, it's just very comforting that there's something we can do to help our wee man, our dear first born son without having to rely on the medical professionals. I will be asking to see the nutritionist to get some help with enzymes and vitamins. Getting plenty of omega 3 is going to be very beneficial as well, so will having a low sugar diet. Autistic children have plenty of yeast in their bodies, sugar just multiplies yeast production. I never knew that yeast and speech were hugely related.
We just feel that it could have been better for the doctor to have told us about all these treatment options instead of relaying a grim prognosis. We can't thank the Lord enough for the internet and the information that can literally change lives.
So how do I feel about the autistic traits that Josiah portrays? Mainly the spinning for long periods of time and turning objects by their minutest particles..The biggest clues of autism. I do regard them as great skills. How many of us can spin like that without getting dizzy, or are able to concentrate so much to find a tiny thread and turn the object around. These aren't bad traits just because they fall under the label of autism. These are just rare skills that not many of us are gifted with.
The Lord has a plan for Josiah, it might not be the plan that we have envisioned for him, but it's the Lord's plan written down before the foundation of the world. It makes me so glad that the covenant is unconditional and unilateral, depending upon God alone.
All these tears, prayers, efforts are so worthy of our wee handsome, silly, adorable, loveable Josiah. May the Lord see it fit to bless these efforts and strenghten us in our journey as we train Josiah to what He has in store for him.
"O turn unto me, and have mercy upon me; give thy strength unto thy servant, and save the son of thine handmaid" Psalm 86:16
Maria
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Comments (5)
Maria, I am so sorry to hear of the pain you have been suffering. I do understand it. We had a grandson who was born not breathing and the medical industry gave us a very grim prognosis regarding his future. They said he might never suck, swallow or gag and that he would most likely be on a feeding tube for the rest of his life. Brandi and Kevin (our daughter and son-in-law), kept their eyes on the Lord and didn't waiver. They trusted God and they, like you, looked outside the medical industry for wisdom. Two days after his grim prognosis, Brandi and I went to Children's Hospital and she asked for a gown and insisted on giving her son skin to skin contact. We spent the entire day there. God sent an angel while we were breaking for lunch. He sent a wonderful occupational therapist to work with Kyran while we were gone. The doctors wouldn't even let Brandi try nursing her son and the occupational therapist, unbeknown to us was pleading on his behalf. They finally relented and let her hold him and try sucking some breast milk of Brandi's off of her gloved finger. He did really well. Next she rigged up a pacifier/bottle and he took breast milk in. And guess what? In those minutes we watched that little darling suck, swallow AND gag! All of the things the doctors had just told them might never happen. God is so faithful! Kyran is a normal (almost 2 year old today) He is walking, talking, eating like a horse and a joy to be with. He does appear to have minimal brain damage in that his leg muscles are overly developed and that causes him to walk jerkely, but so far, there is no other sign of the severe brain damage he was diagnosed with.
I love your outlook. You are a very wise mom and the research you are doing is tremendous. Keeping him away from t.v., computer games and things like that is important as well because he needs live interaction. I'm sure you've already read all about that stuff, though. I have two friends with autistic children and they have both told me that structure, firm discipline, lots of love and constant interaction as well as diet are highly important in aiding their children to become the most they can be. I think that goes for all children, dont' you?
Thank you for sharing your heart. I will be praying for you on this new and interesting journey! God bless Josiah.
((((Hugs))))
Jana
I am sorry about this...I will keep you and your son in my prayers. I am sure it doesn't help that you are feeling the hormones of pregnancy.
Oh Maria! You have such a healthy and positive outlook on this situation. All things work together for good... I keep repeating this to myself also. I will pray that the changing of his diet helps.
I know from experience that alot of doctors have horrid bedside manners. The internet can be such a huge blessing.
Please remember to take care of yourself.
Love ya,
Jenn
I am so sorry to hear the diagnosis. I guess, like you said, it's been something that we all knew was a possibility, but hoped wasn't going to come. And it's better to know the truth and start doing what you can.
You have a beautiful attitude, though I know it will be hard at times! Lots of love and prayers to all of you.
Dear Maria, I am so very sorry. God bless you and comfort you at this time. Yes, being a mom (or a dad) is one of the most difficult things in the world. When our child suffers, we suffer. My heart breaks with yours.
The Lord our God will not leave you alone in this difficulty. He is with you always.
"God is our refuge and strength, a very present help in trouble." ~ Psalm 46:1